SUPPORT GROUPS IN U.S. BY STATE
Arizona PKU and Allied Disorders Network
Michele and Dustin Dial
3820 E. Sailboat Pl
Tucson, AZ 85739
Email PKUsupport@msn.com
PKU Parents of CaliforniaMary Mercurio
PMB 117
9785 Baseline Rd.
Rancho Cucamonga, CA 91730
Email: pkusocal@keyway.net
Website:
http://www.pkuparents.org
PKU Support Group of Florida
Website:(updated) http://www.floridapku.com/
e-mail: info@FloridaPKU.com
Web:(former website) http://mysite.verizon.net/magol/index.html
PKU Organization of Illinois
P.O. Box 102
Palatine, Illinois 60078-0102
Phone: (630) 415-2219 (voice mail)
Fax: (603) 994-7862
Email: info@pkuil.org
webpage :
http://www.pkuil.org
Indiana PKU and Allied Disorders Assoc.
7352 Cotherstone Ct.
Indianapolis, Indiana 46256
Phone: (317) 594-8657
Email: sandyc@kiwi.iupui.edu
Website: http://www.indianapku.org/
Iowa PKU Foundation
2170 NW 138th
Clive, IA 50325
Email: blythestanfel@mchsi.com
Website: www.iowapkufoundation.com
Kansas PKU Network
503 W. 13th
Hutchinson, KS 67501
(620) 728-0772
Kathy Jerke, Director
kljerke@yahoo.com
Kentucky
Contact: Stephaine Bradley
502-447-0187
stephaine4278@iwon.com or
Karen 502-727-5457
Jefferson County
Maryland Alliance of PKU Families, Inc.
1699 Springmount Dr.
Eldersburg, Maryland 21784
Phone: (410) 795-2091
Contact: Rob Kerr
e-mail: RobKerr@erols.com
Michigan PKU website
3062 E Lois
Midland, MI 48640
Email smlaprad@yahoo.com
www.michigan-pku.org
The Mid-Atlantic Connection for PKU and Allied Disorders, Inc (MACPAD) MACPAD
P.O. Box 6086
Lancaster, PA 17607-6086
Telephone: 717-872-7546
E-mail - Info@macpad.org
Webpage: http://www.macpad.org/
(Lots of good information and links to other sites)
Midwest PKU Group
Lees Summit, MO
Email pvannorman@KC.RR.COM
Minnesota PKU FoundationFor Teens and Young Adults
A Place of Our Own
1397 Arden Oaks Drive
Saint Paul, MN 55112
http://www.peds.umn.edu/pku
PKU Mississippi, "Parents and Kids United."
(A division of HOPE Foundation ULJ.)
Mail: 1510 19th Avenue
Gulfport, Mississippi 39501
Phone: (228) 964-7817
Contact: Dr. Lynnise Finney DN.
The National Coalition for PKU and Allied Disorders
PO Box 1244
Mansfield, Massachusetts 02048
Phone 877-996-2723
Email: coalition4pkuad@aol.com
Webpage: http://www.pku-allieddisorders.org
If you would like to join a discussion group for Tyrosinemia, contact Coalition4pkuad@aol.com
New England Connection for PKU and Allied Disorders
5 Jones Lane,
E. Sandwich, Massachusetts 02537
Phone: (508) 261-1291
Email: John Sullivan treasurer lophechef@ capcod.net
Webpage: http://www.necpad.org/home.htm
New Mexico PKU Organization ...Families Helping Families
e-mail: nmpku@sikhnet.com
Western New York PKU Association
72 Windsor Avenue
Buffalo, New York 14226
Phone: (716) 838-3452
Email: Lumina9095@aol.com
North Dakota PKU Support
1216 2nd Avenue NE
Reynolds, North Dakota 58275
Phone: (710) 847-2047
Email: Autumn4492@aol.com
Ohio Coalition for PKU and Allied Disorders
216 S. Maple St.
Lindsey, Ohio 43442
Phone: (419) 665-2784
Email: rrogers@nwonline.net
Association for Neuro-Metabolic Disorders (ANMD)
5223 Brookfield Lane
Sylvania, Ohio 43560-1809
Phone: (419) 885-1497
E-mail: braunlic@pilot.msu.edu
PKU Support Group - South Carolina
Contact: Ina and James W. Wilson, Jr.
EMail: inawilson@pmsc.com
P.O. Box 280123
Columbia, SC 29228
Phone: (803)755-3950
South Dakota PKU Support Group
P.O. Box 295
Mitchell, SD 57301
Phone: (605)996-4000
Contact:: Gaye Marie Heidinger
The Gulf Coast PKU Association (Texas)
2331 Pebworth
Spring, Texas 77373
Phone: 713-353-2376
North Texas PKU Association
325 S. Juniper Rd #838
Allen, TX 75002
Phone 214-228-5349
Email t-hermanns@ti.com <o:p></o:p>
E-mail: northtexaspku@angelfire.com
Website http://www.ntxpku.org
South Texas Association for PKU and Allied Disorders (STAPAD)
DeAnna Harner stapad.org@sbcglobal.net
Ann Al-Qallaf (secretary) aalqallaf@HOUSTON.RR.COM
Unified to Support Metabolic Disorders
7935 Autumn Laurel Tr
Houston, TX 77095
DeAnna Harner President
deanna.usmd@gmail.com
www.usmd-pku.org (need to check website)
PKU Washington Scene
4736 Lakemont Dr. S.E.
Olympia, Washington 98513
PKU of Wisconsin
6285 Schumacher Road
Waunakee, WI 53597
P.O. Box 320256
Franklin, WI 53132
Telephone: (414) 423-5541
Email: PKUOrgofWI-AlliedDis@prodigy.net
updated June 19, 2008
