If you would like to participate in research regarding OI, you can find information at this site. The U.S. National Institutes of Health, through its National Library of Medicine, has developed ClinicalTrials.gov to provide patients, family members and members of the public current information about clinical research studies. Check often for regular updates to ClinicalTrials.gov.

A place where parents of infants and children with Osteogenisis Imperfecta can share information, learn how to care for a child with OI, and connect with other parents going through similar experiences.

The mission of the Osteogenesis Imperfecta Program is to provide the highest quality of multidisciplinary care to pediatric OI patients and their families. The program is dedicated to maximizing the function of the child and to providing education to the families and associated health care providers. The clinic members and family work together in determining the child's specific needs regarding seating, adaptive equipment, counseling, and orthopedic intervention as appropriate.

Shriners hospitals in the United States and Canada offer an array of treatments for persons with OI. They have been in the forefront of researchwith bisphosphonates as a means to increase bone density.

The most important web page about OI in spanish. Es la página web más completa en español,

Brittle Bone Society. Located in the United Kingdom. Provides advice about legal issues, education, equipment, medical research, and other pertinent matters.

The mission of the Children's Brittle Bone Foundation is to provide funds for research into the causes, diagnosis, treatment, prevention, and eventual cure for osteogenesis imperfecta (OI), while supporting programs which improve the quality of life for people afflicted with OI, promote awareness, and educate the public.

Site with practical information about OI and how to cope successfully with the condition.

"The Bones Page" by Dr. Horatio Plotkin, who is on staff at Shriners Hospital in Montreal, Quebec, Canada. In addition to treating persons with OI, helping with advice and referrals, he has contributed to research published in health science journals.

This is the source of the abstracts in the File Sharing section of the OISN. PubMed, a service of the National Library of Medicine, provides access to over 11 million citations from MEDLINE and additional life science journals. PubMed includes links to many sites providing full text articles and other related resources.

Need help with health information, specifically about OI? Are you looking for medical library where you can find books and journal articles about OI or other health conditions? The National Network of Libraries of Medicine (NN/LM) might be able to assist you. They also have a toll-free number (1-800-338-7657).

Osteogenesis Imperfecta Foundation. Located in Gaithersburg, Maryland (USA). This non-profit organization and its site provide a tremendous amount of information. If you want the latest information on bisphosphonate treatments for OI, visit this site.

Osteogenesis Imperfecta Federation Europe. Contains information in various languages.

To address OI's complex implications, the Osteogenesis Imperfecta Clinic at Kennedy Krieger Institute (in Baltimore, MD) comprises an interdisciplinary team of medical
professionals.

OICAG: Osteogenesis Imperfecta Child Advocacy Group. This site contains legal and medical information in the event that child abuse charges (often falsely) are brought against family members of persons with OI.